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The UT Southwestern Hereditary Hemorrhagic Telangiectasia (HHT) Center is a team of experienced professionals assembled in response to a regional need, especially in the southwestern United States, for the highest quality HHT care. The center was designated an HHT Center of Excellence by the HHT Foundation International in September 2010.

HHT - also known as Osler-Weber-Rendu Syndrome - is a genetic disorder causing abnormal blood vessel development. It affects approximately 1 in 6,000 individuals in the United States. The inheritance is autosomal dominant, meaning only one parent needs to have the gene and the affected individual needs only one copy of the gene. As a result, the disease affects both men and women and approximately half the children of an adult with HHT will also have the disease.

The most common symptom of HHT are nosebleeds. Bleeding may also occur from the gastrointestinal tract and, less often, the lungs. Affected lungs can lose their function as a “sieve”, allowing clots and bacteria to pass through, resulting in the possibility of strokes or brain infections. Abnormal blood vessels in the lungs may result in bleeding or seizures, but these symptoms are not common. 

Our physicians are experts in HHT treatment and preventative options. If only a simple screening and evaluation are needed, it will be performed by the center's medical director. If specific problems such as severe nosebleeds, GI bleeding, pulmonary or neurological symptoms are identified, consultations with various specialists can be arranged during the same visit.

To make an appointment, please contact the UT Southwestern HHT Center at 214-645-2100. For the evaluation of children, call 214-456-2857.